Committees

Committees

Organizing commitee

INTERNATIONAL ORGANIZING COMMITTEE

MARIANNE CLANCY

  • Executive Director HHT Foundation International. (Monkton.MD.USA)

MARIE E. FAUGHNAN M.D. MSC

  • Pneumology. Toronto HHT Center Director. Canada.
  • E-mail: faughnanm@smh.toronto.on.ca

URBAN GEISTHOFF M.D.

  • ENT. Kliniken of the stadt Kolhn. Germany.
  • E-mail: geisthoffu@kliniken-koeln.de or urban@geisthoff.de

PAUL OH PH.D.

  • Dept. of Physiology and Functional Genomics. University of Florida. USA.
  • E-mail: ohp@phys.med.ufl.edu

CARLO SABBÁ M.D.

  • Internal Medicine. Bari HHT Center Director. Italy.
  • E-mail: c.sabba@dimimp.uniba.it

JAMES GOSSAGE M.D.

  • Pneumology. Medical Collage of Georgia. USA.
  • E-mail: jgossage@mcg.edu

CARMELO BERNABEU Ph.D. (Scientific Chair)

  • GRMAB Chair.
  • CIB.CSIC. Madrid. Spain.
  • Tel :34-91-8373112 ext. 4246
  • Fax: 34-91-5360432
  • E-mail: bernabeu.c@cib.csic.es

ROBERTO ZARRABEITIA (Conference Host)

  • Internal Medicine. Coordinator of the HHT Unit.
  • Hospital Sierrallana (Torrelavega.Cantabria) España.
  • Tel: 34-942-847400 ext. 8053
  • Fax: 34-942-847501
  • E-mail: rzarrabeitia@hsll.scsalud.es

Local Committee HHT SPAIN

Hospital Sierrallana & Hospital Universitario Marques de Valdecilla Team (Torrelavega / Santander)

  • Roberto Zarrabeitia (Coordinator. Internal Medicine)
  • Alfonso Pérez del Molino (Internal Medicine)
  • Blanca Señaris (ENT)
  • Carmelo Morales (ENT)
  • Roberto Mejía López (ENT)
  • Jesús Bueno (Radiology)
  • Jose Antonio Parra (Radiology)
  • Manuel Bustamante (Interventional Radiology)
  • Juan Jordá (Interventional Radiology)
  • Andrés González Tutor (Interventional Radiology)
  • Jesús Zarauza (Cardiology)
  • Ana Bustamante (Neumology)
  • Jaime Calvo (Reumatology)
  • Jose Luis Fernández-Forcelledo (Gastroenterology)
  • Rosa Ortiz (Gastroenterology)
  • Angel de la Mora (Ophtalmology)
  • Ernesto Romera (Ophtalmology)
  • Ana Fontalba (Clinical Genetics)
  • Jose Luis Fernández-Luna (Clinical Genetics)
  • Lino Alvarez (Pediatrics)
  • Mª José Rodríguez Lera (ER)
  • Jose Manuel Gutiérrez (General Surgery)
  • Pablo Ovejero (General Surgery)
  • Dolores Acón (Vicedirector of gestion. Area of quality management)
  • Concepción Fariñas (Preventive Medicine)
  • Instituto Radiológico Cántabro (Dr. Luis Cerezal)
  • Instituto Valenciano de Infertilidad (Dra. Sandra González)
  • Auxiliary team consultancy: Teresa Dosal y Josefa Hernández
  • Auxiliary team ward: Rebeca Calderón, Eugenia Martínez
  • Nursery team: Mar Rodríguez, Paz Baudín, Elena Ruiz, Elena Pérez, Mercedes Angulo
  • Secretaries: Concepción Ruiz, Ana Rosa Saiz

(All workers mainly in Sierrallana Hospital deal with HHT. As it is almost impossible make a complete directory we have just include chiefs of services and most related personnel)

Centro de Investigaciones Biologicas (CIB) (CSIC. MADRID)

Members

  • Carmelo Bernabeu (biochemist)
  • Luisa Mª Botella (geneticist)
  • Francisco J. Blanco (biochemist)

Fellows

  • Eva Mª Garrido-Martín (pharmacist and biochemist)
  • Ana C. Valbuena (biologist and biochemist)
  • Carmen Langa (biologist)
  • Luisa Mª Ojeda (biochemist)
  • Lucía Recio (biologist)
  • Virginia Albiñana (biologist)
  • Mikel Aristorena (biologist and biochemist)

SPANISH HHT Patients´ Association

President

  • Santiago de la Riva

Secretary

  • Oscar Caberol

Treasurer

  • Manuel Machado

Members

  • Martín Jiménez
  • Montserrat Vives
  • Ana Carrera
  • Luisa Botella (research area)
  • Roberto Zarrabeitia (clinical area)

Universidad Autonoma de Madrid

  • Francisco Sanz-Rodriguez (biologist)

Hospital Gomez Ulla (MADRID)

  • Jose Ramón Ramírez (Pathologist)

University of Salamanca team

Members

  • Jose M. López-Novoa (physiologist)
  • Alicia Rodríguez-Barbero (cellular biologist)
  • Rogelio González Sarmiento (geneticist)
  • Antonio Cabezón (General practitioner)

Centro de Investigaciones Biomedicas team (CSIC. MADRID)

Members

  • Miguel Quintanilla (oncologist)

Fellow

  • Eduardo Pérez Gómez (cellular biologist)

We would like to thank all people dealing with HHT in our country. It is impossible to name everyone: clinicians, researchers, members of associations and mainly patients to whom all our efforts go together.

Web site sponsor

  • Centro de investigación biomédica en red de enfermedades raras
  • Fundación Comillas
  • Asociación HHT España
  • Fundación Grace Nolan
  • Fundación Internacional HHT
  • Hospital de Sierrallana
  • Servicio Cántabro de Salud
  • Consejo Superior de Investigaciones Científicas
  • IFIMAV - Instituto de Formación e Investigación Marqués de Valdecilla
  • Iberia
  • Gobierno de Cantabria
  • Ayuntamiento de Santander
  • CSIC - Centro de Investigaciones Biológicas
  • SEMI - Sociedad Española de Medicina Interna
  • Genoma España
  • Santander 2016
  • Colegio Oficial de Médicos de Cantabria
  • Sociedad Iberoamericana de Información Científica
  • FarmaIndustria
  • Medicus Mundi Cantabria
  • Fundación Ramón Areces
  • Plan Nacional I+D+i