HHT centers around the world

HHT centers around the world

HHT CENTERS. North America

1. YALE UNIVERSITY SCHOOL OF MEDICINE

Department of Diagnostic Radiology
P.O. Box 208042
333 Cedar St., Room 5039 LMP
New Haven, CT 06520 - USA
Contact: Kate Henderson & Dr. Robert White
Tel: 203-737-5395
Fax: 203-737-5394
http://www.hhtavm.org

 

2. UNIVERSITY OF UTAH MEDICAL CENTER

50 North Medical Drive
HHT Clinic/1A71 SOM
Salt Lake City, UT 84132
Jamie McDonald, MS, LGC and James Carlisle, MD - Co-Directors
Main contact # : 801-581-8188 or tollfree 866-292- 4HHT (Sherlyn Marks- Administrative Coordinator)
Jamie McDonald - 801-585-9702
Dr. Carlisle- 801-581-8188
Fax: 801-581-2414
http://uuhsc.utah.edu/rad/hht.html

 

3. OREGON HEALTH & SCIENCE UNIVERSITY

HHT Center of Excellence
OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011 - USA
Contact: Dr. Mark Chesnutt
Tel: 888-222-6478 ext 7660 or 503-494-7660
http://www.ohsu.edu/hht

 

4. WASHINGTON UNIVERSITY SCHOOL OF MEDICINE

660 South Euclid Avenue
St. Louis, MO 63110-1093 - USA
Contact: Dr. Murali Chakinala, Co-Director
Tel: 877-888-5864 or 314-454-8917
Dr. Andy White, Co-Director
Tel: 1-888-503-2237
Dr. Jay Piccirillo, Ear, Nose & Throat (ENT)
Tel: 314-362-8641
Fax: 314-454-5571
http://hht.im.wustl.edu

 

5. UNIVERSITY OF CALIFORNIA at SAN DIEGO

UCSD Medical Center
200 West Arbor Drive 8756
San Diego, CA 92103 - USA
Contact: Dr. Frank Miller (Asst. Julie Fisher)
Tel: 888-770-0296/619-471-0320
Contact: Dr. Thomas Kinney
Tel: 619-543-6607 (secretary: Angelica Robles)
www.uscd.edu/specialties/radiology/ir/HHT
www.ucsdir.org

 

6. UNIVERSITY OF PENNSYLVANIA

Division of Medical Genetic, 538 Maloney
3400 Spruce Street
Philadelphia, PA 19104-4283 - USA
Contact: Dr. Reed Pyeritz
Clinic Coordinator: Georgia Griffen
Tel: 215-662-4740
Fax: 215-614-0298
www.med.upenn.edu/gdl//

 

7. MAYO CLINIC HHT CENTER

Division of Pulmonary & Critical Care Medicine
200 First Street S.W.
Rochester, MN 55905 - USA
Contact: Dr. Karen Swanson & Dr. Michael J. Krowka
Tel: 507-266-0416
Fax: 507-266-4372
www.mayo.edu

 

8. MEDICAL COLLEGE OF GEORGIA HHT CENTER

Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135 - USA
http://www.mcg.edu/som/medicine/Pulmonary/PulmVasDis.htm
Contact: Jody Kenny for Dr. James Gossage
Tel: 706-721-6791
Fax: 706-721-3069
Email: jkenny@mail.mcg.edu

 

9. TORONTO HHT NETWORK

St. Michael s Hospital
6 Bond St., Room 6049
Toronto, ON M5B 1W8 - CANADA
www.hhttoronto.com
Pediatric HHT Clinic
Director: Dr. Felix Ratjen
Hospital for Sick Children
Tel: 416-813-5837 (contact: Susan Carpenter)
http://www.sickkids.ca/RespiratoryMedicine?section.asp?s=Clinical+Care&sID=3876&ss=HHT=Clinic&ssID=6188
Adult HHT & Pulmonary AVM Center
Contact: Rose Pantalone for Dr. Marie Faughnan, Director
Tel: 416-864-6060 ext. 2407
HHT Genetics Team
The Hospital for Sick Children
Division of Clinical & Metabollic Genetics
555 University Ave.
Toronto, ON M5G1X8
Canada
Contact: Ms. Regan Klatt, MS,CCGC,CGC
Vice-Director
Tel: 416-813-6389
Fax: 416-813-5345
Brain AVM Clinic
University Health Network
Dr. Karel terBrugge
Interventional Neuroradiologist
Tel: 416-603-5266
Email: karel.terbrugge@uhn.on.ca
http://www.brainavm.com

 

10. EDMONTON HHT CENTRE

2E4.26 Walter Mackenzie Centre University of Alberta
8440 112 Street
Edmonton, AB T6G 2B7 - CANADA
Contact: Iris de Guzman for Dr. Vethanayagam
Tel: 780-407-1479
Email: irisd@ualberta.ca

 

11. MONTREAL HHT CENTRE

CHUM, Hotel Dieu
840 rue St. Urbain
Montreal, QC H2W 1T8
Director: Dr. Marie Faughnan
Contact: Therese Carle

Tel: 514-890-8000 local 15672
Fax: 514-412-7123

 

Europe

11. HHTIC LONDON

Hammersmith Hospital
DuCane Road
London, ENGLAND W12 ONN
Contact: Georgina Rudd for Dr. Claire Shovlin
Tel: 44-208-383-3058
Email: c.shovllin@imperial.ac.uk
Contact: Dr. James Jackson (Secretary Pamela Brayshay)
Tel: 44-208-383-3485
You can also contact the Telangiectasia Self-Help Group (TSHG) at www.telangiectasia.co.uk
Contact: Diana Lawson
39 Sunny Croft Downley
High Wycombe, Bucks ENGLAND HP13 5UQ

 

12. HHT HULL NORTHEAST ENGLAND

Hull Royal Infirmary
Anlaby Rd
Hull, ENGLAND HU3 2JZ
Contact: Mrs. Hilary Finnis and Dr. Graham Robinson
Tel: 44(0) 1482-674608
hht@hey.nhs.uk
www.hey.nhs.uk/hht
You can also contact the Telangiectasia Self-Help Group (TSHG) at www.telangiectasia.co.uk

 

13. NATIONAL HHT CENTRE IRELAND

Mercy University Hospital
Grenville Place - Cork, IRELAND
Contact: Margaret Murphy & Dr. Adrian Brady
Tel: 353-21-2305040
Email: Margaret@hht.ie
Patient Support Group:
Grace Nolan Foundation at www.Gracenolan.com

 

14. HHT THE NETHERLANDS

St. Antonius Ziekenhuis
Koekoekslaan 1
3435 CM Nieuwegein, THE NETHERLANDS
Contact: Dr. Hans Jurgen Mager
Appointments: Mrs. Elly Vermorken
31-30-609-9111
www.renduoslerweber.nl

 

15. HHT GERMANY HOMBURG

Univ. HNO-Klinik
Kirrberger Strasse
D-66421 Homburg - Saar, 49 GERMANY
Contact: Dr. Urban W. Geisthoff
Tel: 49-0-6841-162-2900
Fax: 49-0-6841-162-2997
Email: hnougei@uniklinik-saarland.de
Or
Urban.Geisthoff@uniklinik-saarland.de
You can also contact Morbus-Osler-Selbsthilfe e. V. (the HHT Self-Help Group for German speaking countries) at http://www.morbus-osler.de

 

16. HHT GERMANY - COLOGNE

Kliniken der Stadt Koeln / Hospitals of the City of Cologne
Krankenhaus Holweide / Holweide Hospital
HNO - Abteilung / Department of Otorhinolayngology
Neufelder Str. 32 - D-51067 Koeln GERMANY
Patient Support Group: Morbus-Osler-Selbsthilfe www.morbus-osler.de
Contact: Dr. Urban Geisthoff
Tel: 49-221-8907-12727
Fax: 49-221-8907-2730
Email: Geisthoffu@kliniken-koeln.de

 

17. HHT GERMANY MARBURG

Philipps-University Marburg
Department of Otorhinolaryngology
Deutschhausstrasse 3
D-35037 Marburg, GERMANY
Contact: Suzanne Zapf for Prof. Dr. Werner
Tel: 49-6421-2866808
Fax: 49-6421-2866367
Email: zapf@med.uni-marburg.de

 

18. HHT GERMANY-LIPPRINGE

Department of Otolaryngology
Head and Neck Surgery
Karl-Hansen Medical Center
Antoniusstr. 19
D-33175 Bad Lippspringe GERMANY
Contact: Dr. Benedikt J. Folz
Tel: 49-5252-954302
Fax: 49-5252-954350
Email: b.j.Folzmedizinisches-zentrum.de

 

19. HHT DENMARK

Odense University Hospital
Dept. of Otorhinolaryngology
Sdr Boulevard 29
5000 Odense C, DENMARK
Contact: Dr. Anette Kjeldsen
Tel: 045-6320-2120 or 045-6320-2127
Patient Support Group: www.osler.dk

 

21. HHT NORTHERN ITALY

U.O di Gastroenterologia ed Endoscopia Digestiva
Ospedale Maggiori
Largo Dossena 2
Crema, 26103 ITALY
HHT Clinical Team
Contact: Dr. Elisabetta Buscarini
Tel: 0039-0373-280422/280726 (secretary)
Fax: 0039-0373-280654
ebuscarini@rim.it
HHT Genetics Team
Universita di Pavia
Genetica Medica
Via Forlanini 14
Pavia, 27100 ITALY
Contact: Professor Cesare Danesino
Tel: 0039-0382-507737
Fax: 0039-0382-525030
cidi@unipv.it
Patient Support Group:
Fondazione Italiana HHT, email: informazioni@hht.it. or website http://www.hht.it

 

22. HHT SOUTHERN ITALY

University of Bari
Dipartimiento di Medicina Interna e Medicina Pubblica
Universita Policlinico
Piazza G. Cesare, Bari 70124 ITALY
Contact: Professor Carlo Sabba, M.D.
Tel/Fax: 39-080-5478708
informazioni@hht.it
www.hht-italia.com

 

23. HHT CENTER SPAIN

Hospital Sierrallana (Servicio Cantabro de Salud)
Servicio de Medicina Interna
Barrio Ganzo s/n
39300 Torrelavega (Cantabria) SPAIN
Contact: Dr. Roberto Zarrabeitia
Email: rzarrabeitia@hsll.scsalud.es
Tel: 34-942-847400 (8053)
Fax: 34-942-847501
Dr. Pérez del Molino
Email: apdm@ono.com
Spanish HHT Patients Association web page is: www.asociacionhht.org or renduosler@asociacion-hht.org

 

24. HHT CENTER SOUTHERN FRANCE

Service de Genetique
Hotel Dieu
Quai Jules Courmont
69288 Lyon Cedex 02 FRANCE
Contact: Professor Henri Plauchu
Tel: 4-72-413295
Fax: 4-72-413146
Email: Henri.plauchu@chu-lyon.fr

 

25. HHT CENTER PARIS FRANCE

Consultation Pluridisciplinaire Maladie de Rendu-Osler
Hopital Ambrose Pare
9, Avenue Charles de Gaulle
92104 Boulogne Billancourt Cedex FRANCE
Contact: Benedicte Chesneau
Tel: 33-014094432
Email: Benedicte.chesneau@apr.aphp.fr

 

26. HHT CENTER NORWAY

Rikshospitalet University Hospital
Oslo, Norway
Contact: Dr. Ketil Heimdal, Consultant in Clinical Genetics
Tel: 47-2307-5593
Fax: 47-2307-5590
Email: Ketil.Heimdal@rikshospitalet.no

 

Asia

27. HHT CENTER JAPAN

Akita University School of Health Services
Department of Physical Therapy
1-1-1 Hondo, Akita, 010-8543 JAPAN
Contact: Dr. Takanobu Shioiya
Tel: 81-18-834-111 Ext. 6531
Fax: 81-18-884-6500
Email: shioya@hos.akita-u.ac.jp

 

28. HHT CENTER CHINA

Department of Radiology
The Institute of Vascular Interventional Radiology
The First Affiliated Hospital of China Medical University
No. 155, Nanjing Bei Street - Shenyang, CHINA 110001
Contact: Dr. Hongshan Zhong & Dr. Ke Xu
Tel: 86-24-832-82447
Fax: 86-24-83282629
Email: zhonghongshan@hotmail.com or xuke@cmuimaging.com

 

29. HHT CENTER ISRAEL

Schneider Children's Medical Center of Israel
Rabin Medical Center, Tel Aviv University
14 Kaplan St. , Petach Tikwa
HHT clinic, Respiratory Division
Dr. Meir Mei-Zahav, Director
Tel: (972)-3-9253654
Fax: (972)-3-9253308
email: meir_zahav@clalit.org.il
Patient Support Group: Meira Heiman, President
Tel: 972-050-6-417187
Email: hht-issg@yahoo.com or Heiman@netvision.net.il

 

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  • Servicio Cántabro de Salud
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